Life Update…Brain Dump…Picture Dump

Life just keeps happening, no matter how we try to slow it down.  It’s been a couple of weeks since my last post, and we’ve just been trying to live and deal with everything this cancer diagnosis has been throwing at us the best way we can.  This post might be a little all over the place, but I’m just trying to brain dump and get it out of my head, if that makes sense.

After surgery, we met with his oncologist, she went over the reports from the surgeon and the pathology, told us his stage was 3c, went over all the specifics of chemo, what protocol he’d be on, side effects to expect, it was a lot to take in…like every appointment before it.

We decided tacos and tequila were in order for dinner that night…you gotta do what you gotta do to cope sometimes and for me, that was it.  Trying to just breathe and be present in each moment is hard when the moments are a reminder that cancer has invaded your family and threatened to tear your world apart.

A few weeks after surgery to remove the tumor and surrounding lymph nodes, we got the call that we needed to schedule a repeat CT, just to see what a baseline would be with no cancer present before chemo, and a port placement so they can administer chemo and do blood draws through the port instead of having to poke him with an IV every time they’d need to get blood or getting chemo, this will save his veins and it gets the chemo to his heart faster, which in turn pumps it through his system faster.  We got the call that we’d need to do these two things around 4 in the afternoon and by 9 the next morning we were in the hospital to get it done.

It was fairly quick and painless, that’s what Sean tells me anyway, we were home by lunch and that was that.  He said he had a little tenderness, like someone had punched him in the chest…of course, he did this without sedation as is becoming standard for him…he did his colonoscopy with no sedation too.  Anyhoo, port is in, CT is done, the only thing left to do is start chemo.

Aside from that, we’ve been trying to finally get around to those things that we all seem to put off for another day…

We’ve been married for 14 years, this is the very first time in our marriage that we have a bedroom with actual grown up furniture and decor on the walls and matching night stands, like it all looks like it’s meant to be together.  I love going into our room and seeing my beautiful bed and everything all tidy.  It makes me smile to know that we’ve put thought and effort into creating a space for us.

Another project we recently finished was our entry way and gallery wall.  That light fixture in the entry way…it used to be a huge glass ball reminiscent of when this house was first built 30 years ago.  We finally picked a new light fixture and replaced the old one, got our beautiful hutch setup, and redid our gallery wall to include a canvas from our recent session with my good friend, Sarah.  It makes my heart happy to look over and see my entry and gallery wall.

If there’s one thing you take from this post, let it be this, don’t wait until you or your loved one has gotten a life altering diagnosis to do things for you, things that you’ve been talking about doing for a long time.  Do them now!  Enjoy your life, every day, every moment is a gift.

it’s not all sunshine and rainbows…it’s still cancer

After the initial shock of a cancer diagnosis started to wear off, both of us got into this mindset of ok, let’s get this fixed, let’s schedule all the things and get this thing out of you and move on with life. All you hear from everyone once you start telling your friends and family is how “colon cancer is THE cancer to get if you have to get one” or “colon cancer is one of the most beatable cancers out there”, it’s absolutely well meaning, but in the back of your mind *at least in the back of MY mind*, I was thinking okay, honestly, that’s great and all but it’s still fucking cancer. It’s still scary as hell, and not everything is sunshine and rainbows and a walk in the damn park. Again, remember in a previous blog post I talked about the grieving process and how getting a diagnosis like this, you go through all those same steps, so clearly at this point I was in the anger phase. lol

Once we had the pathology back, we were able to meet with the oncologist, and she’s terrific, she has the right amount of bedside manner mixed with “I know how to fix this and I’ve got it” confidence. We left that appointment feeling better, armed with a little more information than before we went in, and a better idea of the steps needed to move things along.

Photo Credit: Hannah Thomas 2018

Next up was a CT to see exactly what was going on and where, if there was more than just the one tumor or if it had already started to spread outside of the colon. The hardest part of that was waiting for the results, once those came back, we were able to meet with the surgeon who would do the colon resection surgery. In meeting with him, I was confident in his ability but I just couldn’t wait to have it done, but wait we did. We saw the surgeon January 2nd and surgery was scheduled for February 5th. GAH! In my mind, all I could think was why in God’s name are we not moving forward to remove this disease before it has the chance to grow and spread!! It was frustrating to say the least. In the time we had to wait, there were more tests and insurance red tape to deal with…don’t even get me started on the insurance bullshit, another post for another time, perhaps.

One of the tests that needed to be done was a PET scan. If you are like me, you aren’t familiar with all these different types of tests and why you need them all or how they differ from each other…lucky for me, Sean has been in the medical field for over 20 years and knows all of this type of info and explained it in ways I could easily understand lol, that’s not to say I didn’t still get confused, but ya know…

Photo Credit: Hannah Thomas 2018

So, we went to get the PET scan. I sat in the waiting room for 2 hours while he went back and drank the dye, then waited, then did the scan. The next day they call and say – well, good news and bad news, good news is you are tumor free from your eyes to your belly. Bad news is they didn’t have you empty your bladder so we can’t see the area we are actually concerned about, so you need to repeat the scan. UGH! So a week later, we went back and repeated everything, but you better believe, he emptied his bladder first! A couple of days later, we got a call that the scan showed some areas that “lit up” from the dye aside from Pennywise, so there was talk about doing a biopsy before the surgery to see what was what with those areas. Eventually it was decided the biopsy wouldn’t be possible because of the location and how they’d have to get to it, so they’d just have to deal with it during surgery.

At this point, all the testing was done…we were just in the last few days before surgery and trying to prepare for all that was to come with it.


Once you hear that word…Cancer…it shifts something in you. It doesn’t compare, at all, but the only thing I can compare it to is when I found out I was pregnant. From the second I saw the two pink lines, everything in my world shifted. Priorities change. Things become more clear in your mind.
life, growth, surviving, living, pain, beauty, a little dash of diva

I have found myself walking a thin line between trying to be the optimistic, supportive cheerleader wife and trying to be grounded in reality and really think about what a cancer diagnosis means. The thing about Sean is he has been the eternal optimist and he KNOWS he will beat cancer, his strength through the first weeks and months of all this has been truly incredible. I felt like I was falling apart constantly, the littlest thing would set me off on a crying jag. Yet, at the same time, I believe he will beat this and I know he will be okay.

It’s a hard space to be in mentally, feeling emotionally fragile all the time but trying to keep the positive thoughts at the forefront. I struggle with anxiety and depression in normal day to day life, then you throw something life altering like cancer into the mix and there’s an even bigger chance of falling into a depression because things just seem so hopeless and you feel helpless. I’m someone who really likes to be in control, and fix things…I can’t fix this. I have zero control over any of this and I HATE that.

Cristen Rogers-Author

Some things that I’ve found to help me combat all these scary feelings and thoughts are doing things that make us feel like things are still normal. Normalcy is something you take for granted until you don’t have it anymore.

Back in May of 2017, we went from a SAD *Standard American Diet to a WFPB *whole food plant based diet, basically cutting refined, processed crap and increasing the whole foods, eating plant based. It takes a little getting used to and a little more preparation, but it’s not as hard as it seemed at one time. Anyway, we had been doing great, then cancer happened and life became about getting to and from doctor appts and my meal planning and cooking sort of flew out the window, take out was happening way too often and we’d fallen back into the SAD because it’s easy. Now that we feel like we’ve got a better handle on the cancer stuff, we are back to WFPB, and have found an organic farm near our house that has a CSA box (Community Supported Agriculture) program, so weekly we go out to the farm and pick up our fresh grown, organic produce and my kids get to visit the goats and donkey’s and chickens. It’s something normal that we all enjoy.

We’ve found that all four of us really enjoy thrifting! We have a lot of great thrift stores all around us and in the past couple of months, we’ve been to all of them! We’ve found some awesome deals and gotten some really cool stuff. There are times we go and don’t buy anything, just have fun looking at all the ‘treasures’ and other times, we will each find something to buy. The important part is we are all together, enjoying ourselves and having fun.

Basically, we are just trying to live. Live life to the fullest, create memories wherever we can, enjoy being together even if it’s just the mundane stuff like grocery shopping.