Once we had the pathology back, we were able to meet with the oncologist, and she’s terrific, she has the right amount of bedside manner mixed with “I know how to fix this and I’ve got it” confidence. We left that appointment feeling better, armed with a little more information than before we went in, and a better idea of the steps needed to move things along.
Next up was a CT to see exactly what was going on and where, if there was more than just the one tumor or if it had already started to spread outside of the colon. The hardest part of that was waiting for the results, once those came back, we were able to meet with the surgeon who would do the colon resection surgery. In meeting with him, I was confident in his ability but I just couldn’t wait to have it done, but wait we did. We saw the surgeon January 2nd and surgery was scheduled for February 5th. GAH! In my mind, all I could think was why in God’s name are we not moving forward to remove this disease before it has the chance to grow and spread!! It was frustrating to say the least. In the time we had to wait, there were more tests and insurance red tape to deal with…don’t even get me started on the insurance bullshit, another post for another time, perhaps.
One of the tests that needed to be done was a PET scan. If you are like me, you aren’t familiar with all these different types of tests and why you need them all or how they differ from each other…lucky for me, Sean has been in the medical field for over 20 years and knows all of this type of info and explained it in ways I could easily understand lol, that’s not to say I didn’t still get confused, but ya know…
So, we went to get the PET scan. I sat in the waiting room for 2 hours while he went back and drank the dye, then waited, then did the scan. The next day they call and say – well, good news and bad news, good news is you are tumor free from your eyes to your belly. Bad news is they didn’t have you empty your bladder so we can’t see the area we are actually concerned about, so you need to repeat the scan. UGH! So a week later, we went back and repeated everything, but you better believe, he emptied his bladder first! A couple of days later, we got a call that the scan showed some areas that “lit up” from the dye aside from Pennywise, so there was talk about doing a biopsy before the surgery to see what was what with those areas. Eventually it was decided the biopsy wouldn’t be possible because of the location and how they’d have to get to it, so they’d just have to deal with it during surgery.
At this point, all the testing was done…we were just in the last few days before surgery and trying to prepare for all that was to come with it.