it’s not all sunshine and rainbows…it’s still cancer

After the initial shock of a cancer diagnosis started to wear off, both of us got into this mindset of ok, let’s get this fixed, let’s schedule all the things and get this thing out of you and move on with life. All you hear from everyone once you start telling your friends and family is how “colon cancer is THE cancer to get if you have to get one” or “colon cancer is one of the most beatable cancers out there”, it’s absolutely well meaning, but in the back of your mind *at least in the back of MY mind*, I was thinking okay, honestly, that’s great and all but it’s still fucking cancer. It’s still scary as hell, and not everything is sunshine and rainbows and a walk in the damn park. Again, remember in a previous blog post I talked about the grieving process and how getting a diagnosis like this, you go through all those same steps, so clearly at this point I was in the anger phase. lol

Once we had the pathology back, we were able to meet with the oncologist, and she’s terrific, she has the right amount of bedside manner mixed with “I know how to fix this and I’ve got it” confidence. We left that appointment feeling better, armed with a little more information than before we went in, and a better idea of the steps needed to move things along.

Photo Credit: Hannah Thomas 2018

Next up was a CT to see exactly what was going on and where, if there was more than just the one tumor or if it had already started to spread outside of the colon. The hardest part of that was waiting for the results, once those came back, we were able to meet with the surgeon who would do the colon resection surgery. In meeting with him, I was confident in his ability but I just couldn’t wait to have it done, but wait we did. We saw the surgeon January 2nd and surgery was scheduled for February 5th. GAH! In my mind, all I could think was why in God’s name are we not moving forward to remove this disease before it has the chance to grow and spread!! It was frustrating to say the least. In the time we had to wait, there were more tests and insurance red tape to deal with…don’t even get me started on the insurance bullshit, another post for another time, perhaps.

One of the tests that needed to be done was a PET scan. If you are like me, you aren’t familiar with all these different types of tests and why you need them all or how they differ from each other…lucky for me, Sean has been in the medical field for over 20 years and knows all of this type of info and explained it in ways I could easily understand lol, that’s not to say I didn’t still get confused, but ya know…

Photo Credit: Hannah Thomas 2018

So, we went to get the PET scan. I sat in the waiting room for 2 hours while he went back and drank the dye, then waited, then did the scan. The next day they call and say – well, good news and bad news, good news is you are tumor free from your eyes to your belly. Bad news is they didn’t have you empty your bladder so we can’t see the area we are actually concerned about, so you need to repeat the scan. UGH! So a week later, we went back and repeated everything, but you better believe, he emptied his bladder first! A couple of days later, we got a call that the scan showed some areas that “lit up” from the dye aside from Pennywise, so there was talk about doing a biopsy before the surgery to see what was what with those areas. Eventually it was decided the biopsy wouldn’t be possible because of the location and how they’d have to get to it, so they’d just have to deal with it during surgery.

At this point, all the testing was done…we were just in the last few days before surgery and trying to prepare for all that was to come with it.

It’s Really Not Good, It’s Cancer

Oh where do I begin…

As I sit here, the words want to come out, but they don’t, if that makes any sense. It’s like if I type them out, they are real and even though I know they are already real I don’t want to acknowledge them one more time…but I must. It’s our reality. Cancer.

rocks, water, stream, river, Goodyear, Arizona, Estrella Star Tower

Photo by : Hannah Thomas 2018

For as long as I can remember, my husband has suffered from IBS type issues. He always just chalked it up to different foods or stress triggering it. After years of dealing with this, things changed a bit, he started noticing blood. Initially he thought nothing of it, just figured he probably had hemorrhoids or something equally benign. In fact, he didn’t even mention it to me. One day after I went into the bathroom after him I noticed blood in the water in the toilet and it scared the hell out of me. I went and found him and told him, that’s it, it’s time to make an appointment with a GI doctor and get his gut issues figured out.

Fast forward a few days, he was able to get into the GI doctor fairly quickly and after going over his history with her, she agreed it did sound like typical IBS issues, but to be safe, she wanted to run some additional tests, including a colonoscopy. This was all happening in early December 2017. The day of the colonoscopy, I had Asa with me in the waiting room for the length of the procedure. I will never, ever forget that long walk down that hallway that seemed to go on forever. I remember her words, clear as day…”so, he did great, but unfortunately we did find something and …it’s really not good, it’s cancer”.

The entire world stopped. I mean, came to a crashing halt. I couldn’t breathe. I was trying to focus but all I could hear were her words ringing in my head….CANCER. I just wanted to get out of there and find some air. I still hadn’t even made it to where Sean was getting dressed. I was trying to keep Asa out of everything and hold myself together. When she opened the door to the procedure room where he was, I looked at him and saw in his eyes……everything that I was feeling mirrored in his face.

rocks, stacked, blue skies, desert, Goodyear, Arizona, Estrella Star Tower

Photo Credit : Hannah Thomas 2018

The GI doctor had already been in contact with both the surgeon, and the oncologist, and started things in motion before we had even left to get this whole process going of blood work and CT scans and PET scans and eventually surgery scheduled. It felt like forever before we were able to just get out of there, and it felt like the longest walk of my life as we made our way out of there and down through the same Emergency Department where my husband has worked for the last 13 years…both of us had tears pooling in our eyes and spilling out on our cheeks and as we passed a few nurses he’s worked with forever, the questioning looks on their faces as they asked me is everything ok and all I could manage was “no” as I followed him out of the doors into the sunshine.

The whole drive home, we both cried…me as I drove and him as he sat in the backseat with Asa. What in the world happens now? How do we do this? Why is this happening? So many questions and there are really no answers….