Life Update…Brain Dump…Picture Dump

Life just keeps happening, no matter how we try to slow it down.  It’s been a couple of weeks since my last post, and we’ve just been trying to live and deal with everything this cancer diagnosis has been throwing at us the best way we can.  This post might be a little all over the place, but I’m just trying to brain dump and get it out of my head, if that makes sense.

After surgery, we met with his oncologist, she went over the reports from the surgeon and the pathology, told us his stage was 3c, went over all the specifics of chemo, what protocol he’d be on, side effects to expect, it was a lot to take in…like every appointment before it.

We decided tacos and tequila were in order for dinner that night…you gotta do what you gotta do to cope sometimes and for me, that was it.  Trying to just breathe and be present in each moment is hard when the moments are a reminder that cancer has invaded your family and threatened to tear your world apart.

A few weeks after surgery to remove the tumor and surrounding lymph nodes, we got the call that we needed to schedule a repeat CT, just to see what a baseline would be with no cancer present before chemo, and a port placement so they can administer chemo and do blood draws through the port instead of having to poke him with an IV every time they’d need to get blood or getting chemo, this will save his veins and it gets the chemo to his heart faster, which in turn pumps it through his system faster.  We got the call that we’d need to do these two things around 4 in the afternoon and by 9 the next morning we were in the hospital to get it done.

It was fairly quick and painless, that’s what Sean tells me anyway, we were home by lunch and that was that.  He said he had a little tenderness, like someone had punched him in the chest…of course, he did this without sedation as is becoming standard for him…he did his colonoscopy with no sedation too.  Anyhoo, port is in, CT is done, the only thing left to do is start chemo.

Aside from that, we’ve been trying to finally get around to those things that we all seem to put off for another day…

We’ve been married for 14 years, this is the very first time in our marriage that we have a bedroom with actual grown up furniture and decor on the walls and matching night stands, like it all looks like it’s meant to be together.  I love going into our room and seeing my beautiful bed and everything all tidy.  It makes me smile to know that we’ve put thought and effort into creating a space for us.

Another project we recently finished was our entry way and gallery wall.  That light fixture in the entry way…it used to be a huge glass ball reminiscent of when this house was first built 30 years ago.  We finally picked a new light fixture and replaced the old one, got our beautiful hutch setup, and redid our gallery wall to include a canvas from our recent session with my good friend, Sarah.  It makes my heart happy to look over and see my entry and gallery wall.

If there’s one thing you take from this post, let it be this, don’t wait until you or your loved one has gotten a life altering diagnosis to do things for you, things that you’ve been talking about doing for a long time.  Do them now!  Enjoy your life, every day, every moment is a gift.

School Days

So Hannah is supposed to be starting kindergarten next Monday. See, we did an open enrollment for the school we want her to go to. We got a letter of approval back in March. The school we wanted her to go to is not in our district, after we got the letter saying we got into the school we wanted we didn’t bother registering her in our ‘in district’ school. We don’t want her to go there anyway. So fast forward to last week. We go and do the school shopping, clothes and supplies. Then Friday I call the school to find out if she is AM or PM kindergarten (that is a whole other post about how it was supposed to be full day but is now half day). The school tells me that we won’t know if she is even guaranteed a spot til Thursday for Meet The Teacher because they had a bunch of new ‘in district’ registrations in July. Fantastic.

Hubby and I talked about it and decided that we will be homeschooling her for the year if she doesn’t get a spot or if she is in PM Kindy. We talked to Hannah and she says she is ok with either so I am just hoping it all works out. But I am seriously frustrated. I mean, not knowing until 3 days before school starts exactly what is happening? What if I were a working mom and needed to know for figuring out a daycare or other type solution? Just seems like really poor planning to not have the information readily available sooner.

On a side note, Hannah’s nose is really looking great. We met with the plastic surgeon last week for her one week follow up and he was pleased with the healing. He had gotten the pathology back on the tissue he removed and it was a benign mole. Nothing to worry about and he said that it shouldn’t come back, but if we notice that it starts to come back we will just have to go in and take all the surrounding tissue out but he doesn’t anticipate that happening.